All I can say is “Wow”. Today was an interesting day. It started out with clinic, which all went well. Lydia’s central line (for drawing blood) has been not working properly again, but with much patience and positioning of Lydia, the labs were able to be drawn. Her counts continue to look great. She hasn’t needed a transfusion in weeks, thanks to her new bone marrow doing its job. Her red blood cells and platelets are still lower than normal, but are either crawling higher or hanging out in a safe range. Our doctor is just so pleased with how well Miss Lydia is doing. She called this the honeymoon period for the GVHD (graft verses host disease). It is responding very well to the meds and as they are tapered down, we will see if there are any flare ups. Hopefully, the honeymoon will not be over!
So after such a nice morning, I got to the Ronald McDonald House and started organizing some papers (not my strong suit). I ran across a document written by the PICU doctor back home, upon diagnosis in November of 2007. As I read all of the facts that I had heard a gazillion times, and really remembered diagnosis, I burst into tears.
I have already processed the fact that Lydia had almost died…and treatment to get her well, I don’t know that I had really processed what the cancer really looked like and tried to change my baby. I don’t know if any of this makes sense. The counts just ring in my ear…White blood cells – 846,000, Platelets – 15,000, and Red blood cells – too few to register on a CBC. If you don’t know what any of these numbers mean, thats ok, I didn’t either. Now I know, too well that there is no reason that Lydia should even be alive. I was told that it was a long shot on that awful night, but I knew that God was in control…no matter what. Lydia was His on earth or in heaven. That was my focus, not numbers…and I am so glad.
How strange to grieve for my baby during such a triumph. Why is God healing her. Who knows? But she is His. He can take her home whenever He chooses. He will one day and oh to be in His glory. But until then, I just pray that we can glorify Him in all that we do.
I want to be refined. I want to reflect His image. He has shown me so much of Himself through this process, but I have SOOO much more to learn.
Soon, I hope to add a Verses tab at the top. They will include Bible Verses that I clung to during this season. One of my favorites is a Psalm – I will lie down and sleep in peace, for you alone, O LORD, make me dwell in safety. - Psalm 4:8. And that is what I am going to do right now.
Pleasant dreams to you all,
Liz
July 12, 2008 at 9:45 am
Hi Liz,
I am so happy to hear that Lydia continues to do well. And I am so proud of you. You are a wonderful example to all of us Moms.
Can’t wait for Lydia and Abby to have a playdate when you get home!
July 12, 2008 at 7:42 pm
Liz,
Wow! What a long way your sweet baby has come! I’m so glad you somehow find the strength to keep this diary. Thanks for sharing the stuff about your delayed grieving – what a gift to see His miracle illuminated in such a way. Our Father truly is the fount of every blessing.
I love you and miss you.
July 12, 2008 at 8:37 pm
I know what those numbers mean and, wow, I can’t even believe those numbers on diagnosis. What a miracle Lydia is! I’m so glad she is doing well and can’t wait for the day when you will be able to return home. I have a vision of next summer when we will be watching our healthy and cancer-free children playing together in one of our backyards. I love that vision! We continue to keep all of you in our prayers!
July 12, 2008 at 8:58 pm
God’s grace astounds me. Lydia is completely in the palm of His hand, and it is such a privilege to be a witness to that. Liz, you are doing great – I’m so proud to call you my friend! I hope the rest of your weekend is wonderful…enjoy that precious family of yours. I love you.
Lisa
July 12, 2008 at 10:58 pm
Oh Liz,
Your words brought tears to my eyes! I can’t wait to give you a long hug in person! You have been sorely missed,prayed for mightily and will be welcomed back with open arms. Joshua is still so faithful to pray for “baby Lydia” and it was with great joy that I got to share with him how God had answered His prayers. I love you!!!
Jen Gamble
July 13, 2008 at 6:59 am
That is one of my favorite verses, one I have clung to when it’s hard to find peace. How thrilled we are to read of Lydia’s progress! Thanks be to God! Remember,Jesus promises, “peace I leave with you, my peace I give unto you, not as the world gives, give I unto you.” (somewhere in John 14!) May you all know this unshakable peace at every moment-
July 13, 2008 at 8:07 am
Liz,Keep on reflecting Him. I love you and pray that you will continue to witness His mighty hand at work in your family. Much Love, Shari
July 17, 2008 at 7:28 pm
Hi Liz,
I guess it is good that we are, most of the time, so busy just dealing with day-to-day issues, especially with Lydia being post-trans, that we don’t have time to stop to think or reflect on how frightening and precarious our daughters’ lives have been. I pray that we just simply keep on letting God lead us through each day, one day at a time, stopping only short times to look back in awe of it all. I’m so thankful that Lydia has come so very far and prayers that it continue forever!
Cammy – Laken & Nigel’s Mom
http://www.caringbridge.org/visit/lakenparsons
July 18, 2008 at 12:50 pm
What a beautiful journal entry. Thank you, Liz for sharing with those of us who are following along with you on this journey. God is good. Linda Whatley
July 18, 2008 at 8:30 pm
I love you Liz! I’m reading your words at a time in my life when they’re really needed. Thank you–
Jennifer
July 20, 2008 at 8:54 pm
Liz, I don’t say things like this often enough, but I love you, and I love David for loving Lydia so much. That beautiful child is alive, and it’s because of you. Before she got sick, I thought, what a beautiful child this is, now I say, what a beautiful family you are. You have made it happen! Thank you….
July 21, 2008 at 4:30 pm
What a blessing to look back on God’s hand in your lives, and especially in little Lydia!!